Wednesday, April 28, 2010

Havasupai Case Highlights Risks in DNA Research

The article “Havasupai Case Highlights Risks in DNA Research” in the April 21 edition of the New York Times highlights another debate over the use of donated DNA. However, in this case, 41 members of the Havasupai Indian tribe are refusing to donate their DNA for genetic research because there is no absolute guarantee that it will not be used for anything else. This distrust has started recently, when parents in Texas sued the state health agency when they learned that blood taken from their babies for disorder screening was made available to scientists without authorization. Unfortunately, this poses a problems for researchers, for they cannot give an absolute guarantee, but the also cannot do their research if people can’t trust them.

http://www.nytimes.com/2010/04/22/us/22dnaside.html

9 comments:

Cassandra said...

What I found interesting about this article was that it brought up a very interesting controversy that I didn’t know about. I didn’t know that when DNA testing is done, the DNA taken is made available to other scientists without your authorization. I also found it interesting that by doing DNA testing, one can find out many things about an entire group of people. It was also interesting that DNA researchers cannot give an absolute guarantee which doesn’t seem fair.
What I would like to learn more about is the other uses for this DNA and why it is such a bad thing that it would be used for anything else. I think this review was a good summary of the article but I would have also liked to learn more about why scientists can use DNA without consent of the donor.
Something I didn’t know until reading this article is that scientist are able to use DNA without consent of the donor when in other cases of organ donation etc… consent is neede

Robert said...

One aspect of this review that I enjoyed was that it told the reasons why the Indian tribe did not want to give up there blood for research. I also liked how the review told of a time when parents of babies who had genetic diseases let doctors use their baby’s blood and that blood was not protected. Another thing that I liked was how it showed the problems this had brought up since now doctors cannot guarantee the blood will be safe and the doctors cannot use the blood in the first place because the people do not trust them.

One suggestion that I have is to state why doctors are researching Havasupai Indian tribe’s blood and what is its value. Another suggestion is to state what is done with the blood after it is taken and why its safety cannot be guaranteed.

One thing that impressed me was that doctors take blood from babies which have genetic diseases. I would think that they take this blood so that they could test it and find out how the baby got the disease and how it can be prevented.

Travis said...

One thing that I enjoyed was that it told the reasons why the Indian tribe did not want to give up there blood for research. I also found it interesting that by doing DNA testing, one can find out many things about an entire group of people. Finally i liked how the review told of a time when parents of babies who had genetic diseases let doctors use their baby’s blood and that blood was not protected.

One suggestion is to state what is done with the blood after it is taken and why its safety cannot be guaranteed. I would have also liked to learn more about why scientists can use DNA without consent of the donor.
One thing I learned is that scientist are able to use DNA without consent of the donor

Anonymous said...

Three things this article presented well:
The author demonstrated a new controversial topic concerning the security of peoples' DNA. The article showed that people were unwilling to help doctors research using DNA donations because these donations are not secure. It also described other incidences in which DNA was given to other doctors without permission.

Two suggestions:
I'd like to know more about the complaints that people have about allowing their DNA to be seen by other doctors. Also, the author should be more thorough about the controversy and what this DNA means for doctors, and what they are researching.

One thing I learned from this article is that scientists may observe any portion of one's donated DNA without the donor's permission.

Luke Nichols

Sam Adrian said...

Casey’s article was very interesting, I personally liked the fact that the Indians refused to donate their DNA; I also enjoyed the part of the article that talked about the distrust of the Indians towards the government and how this will pose a problem in the future. I also thought the part about a time when parents of babies who had genetic diseases let doctors use their baby’s blood which was not protected. I thought that maybe this article could have been longer and described why the blood will not be definitely safe and what tribe of Indians are doing this. Overall I learned that Indians are not trusting researchers with their DNA which may just go to waste.

Charlie McCormick said...

One thing i found interesting was that it explained a controversy that i was not aware of. Also, it was interesting and well explained about the Indian tribe and their reasons for not giving up blood. Lastly, it was interesting that DNA testing can show many things about an entire group of people.
One thing I thought could have been improved, is a better explanation of why DNA testing would be considered bad. Also, if there is any special value of the Indian Tribes blood.
Finally, i learned about an interesting topic about an Indian tribes blood type that i had no idea existed.

Brown said...

I really liked this review. I liked how it showed the problems this topic brought up since now Doctors cannot guarantee the blood will be safe and the Doctors cannot use the blood because the people do not trust them. I also like how this review spoke the reasons why the Indian tribe didn't want to give up there blood to research. I also liked how the review told of a time when parents of babies who had genetic diseases let doctors use their baby’s blood and that blood was not protected.

I would have like to know what is done with the blood after it is taken and why it's safety can't be guaranteed. One suggestion that I have is to state why doctors are researching Havasupai Indian tribe’s blood and what is the value of such blood.

I thought it was fascinating that the scientists are able to use DNA without consent of the donor when in other cases of organ donation, consent is needed

gabby wall said...

What I found very interesting and enjoyed learning about in this article and review was that it explained a time when parents of babies who had genetic diseases let doctors use their baby’s blood and that blood was not well protected. I also found it very interesting that the article explained the reasons why the Indian tribe did not want to give up there blood for research. The final aspect of the article that I liked was how it showed the problems that not well protected blood has caused since now doctors cannot guarantee the blood will be safe and the doctors cannot use the blood in the first place because the most people do not trust them.

One suggestion I would make about the article and review is to state and explain what exactly is done with the blood after it is taken and why its safety cannot be always be guaranteed.

One thing I didn’t know until reading this article and review is that scientist are now able to use DNA without the consent of the donor when in other cases consent is usually always necessary

Greg White said...

Overall I really found this article interesting, one specific aspect of this summary that I liked was that it gave the reasons why the Indian tribe did not want their blood used for research.Also I found it facinating how the article explained that some parents of babies who were born with genetic diseases let doctors use their baby’s blood, blood which was not protected. Lastly I liked was how the article showed and explained the certain problems that have been caused by blood and how now doctors cannot guarantee the blood will be safe. One suggestion that I would make about the article summary is to explain what exactly is done with the blood after it is taken and why exactly its safety is not always a guarantee.One thing i learned was that certain scientists are able to use DNA without always asking permission, and also that doctors are able to take blood from babies who have have genetic diseases.